Experience-Based Co-Design Toolkit, U.K. National Health Service, 2012 (website).

This online toolkit was developed to support the U.K. National Health Service’s (NHS) Experience Based Co-Design (EBCD) program, which is committed to improving patient experience in England and beyond. EBCD focuses on patient and staff experience and emotions rather than attitudes or opinions. The approach uses storytelling to identify opportunities for improvement, focuses on the usability of the service for patients and staff and empowers staff and patients to make changes. The EBCD process involves: establishing a core group, collecting staff and patients’ experiences, setting up a co-design event, making changes, and celebrating success. The interactive step-by-step guide includes short video interviews with staff and patients involved in an EBCD cancer care project in 2009-2011that models and documents how to execute this improvement cycle.

Topics: Background/introduction, Capacity building, Change management, Chronic disease, Evaluation/effectiveness, Goal setting, Issue identification/issue framing, Planning – CE, Planning – health, Policy development, Principles, Research, Stakeholder selection

Techniques & tools: Committee/working group, Communication materials, Communication tools, Dialogue, Framework/model/template, Group facilitation, Interview, Stakeholder forum, Workshop